ANNUAL REPORTS

Annual reports will be generated once the registry has matured. Please return to this section at a later date.

The UGICR plans to release its first annual report in 2021.

PEER-REVIEWED AND OTHER PUBLICATIONS

Improving quality of life for patients with upper gastrointestinal cancer (2020)

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Schapova, N. (2020), Improving quality of life for patients with upper gastrointestinal cancer. Monash University. (Online Article).

Barriers and enablers to the implementation of protocol-based imaging in pancreatic cancer: A qualitative study using the theoretical domains framework (2020)

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Maharaj, A. D., Evans, S. M., Zalcberg, J. R., Ioannou, L. J., Graco, M., Croagh, D., Pilgrim, C. H. C., Dodson, T., Goldstein, D., Philip, J., Kench, J. G., Merrett, N. D., Neale, R. E., White, K., Evans, P., Leong, T., Green, S. E., (2020). Barriers and enablers to the implementation of protocol-based imaging in pancreatic cancer: A qualitative study using the theoretical domains framework. PLOS ONE.

Barriers and enablers to the implementation of multidisciplinary team meetings: a qualitative study using the theoretical domains framework (2020)

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Maharaj, A. D., Evans, S. M., Zalcberg, J. R., Ioannou, L. J., Graco, M., Croagh, D., Pilgrim, C. H. C., Dodson, T., Goldstein, D., Philip, J., Kench, J. G., Merrett, N. D., Neale, R. E., White, K., Evans, P., Leong, T., Green, S. E., (2020). Barriers and enablers to the implementation of multidisciplinary team meetings: a qualitative study using the theoretical domains framework. BMJ Quality and Safety.

 

Challenges in Data Linkage – Experiences from An Upper Gastrointestinal Cancer Data Linkage Study (2021)

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Khan, N. N., Zalcberg, J., Brown, W., Ijzerman, M., Emery, J., Philip, J., Holland, J., Atwood, D., Liew, D., Croagh, D., Maharaj, A., Earnest, A., Pilgrim, C., Ioannou, L. and Evans, S., (2021). Challenges in Data Linkage – Experiences from An Upper Gastrointestinal Cancer Data Linkage Study. International Journal of Population Data Science, 5(5). doi: 10.23889/ijpds.v5i5.1444.

Quality of Care Indicators in Pancreatic Cancer (2021)

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Maharaj, A.D., Zalcberg, J.R., Ioannou, L.J., Croagh, D., Evans, S.M. (2021), Quality of Care Indicators in Pancreatic Cancer. In: Søreide K., Stättner S. (eds) Textbook of Pancreatic Cancer. (pp. 79-93). Springer, Cham. https://doi.org/10.1007/978-3-030-53786-9_6

 

The Upper Gastrointestinal Cancer Registry (UGICR): a clinical quality registry to monitor and improve care in upper gastrointestinal cancers. (2019)

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Maharaj, A. D., Holland, J. F., Scarborough, R. O., Evans, S. M., Ioannou, L. J., Brown, W., Croagh, D. G., Pilgrim, C. H. C., Kench, J. G., Lipton, L. R., Leong, T., McNeil J. J., Nikfarjam, M., Aly, A., Burton, P. R., Cashin P. A., Chu, J., Duong, C. P., Evans, P., Goldstein, D., Haydon, A., Hii, M. W., Knowles, B. P. F., Merrett, N. D., Michael, M., Neale, R. E., Philip, J., Porter, I. W. T., Smith, M., Spillane, J., Tagkalidis, P. P.,  Zalcberg, J. R. (2019). The Upper Gastrointestinal Cancer Registry (UGICR): a clinical quality registry to monitor and improve care in upper gastrointestinal cancers. BMJ Open.

Patient-reported outcome measures (PROMs) in pancreatic cancer: a systematic review. (2020)

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Maharaj, A. D., Samoborec, S., Evans, S. M., Zalcberg, J., Neale, R. E., Goldstein, D., Merret, N., White, K., Croagh, D., Pilgrim, C. H. C., Evans, P., Knowles, B., Leong, T., Philip, J., Smith, M., Ioannou, L. (2020). Patient-reported outcome measures (PROMs) in pancreatic cancer: a systematic review. HPB

Monitoring quality of care for patients with pancreatic cancer: a modified Delphi consensus, (2019)

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Maharaj, A.D., Ioannou, L., Croagh, D., Zalcberg, J.,  Neale, R.E., Goldstein, D., Merrett, N., Kench, J.G., White, K., Pilgrim, C.H.C., Chantrill, L., Cosman, P., Kneebone, A., Lipton, L., Nikfarjam, M., Philip, J., Sandroussi, C., Tagkalidis, P., Chye, R., Haghighi, K.S., Samra J., Evans, S.M. (2019), Monitoring quality of care for patients with pancreatic cancer: a modified Delphi consensus. HPB

Improving quality of life for patients with upper gastrointestinal cancer (2018)

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Monash University. (2018), Improving quality of life for patients with upper gastrointestinal cancer. Monash University. (Online Article).

PRESENTATIONS

2020

Victorian Cancer Survivorship Conference 2020:

Holland J., Bonin J., Quinn M., Muhlen-Schulte TJ., Croagh D., Ioannou L., Zalcberg J. (2020) Registry-based Patient-Reported Outcome Measures (PROMs) & Expereince Measures (PREMs) for pancreatic cancer: A pilot study. 3rd Victorian Cancer Survivorship Conference, Melbourne, Australia (12-13 March 2020) (Poster Presentation).

Ioannou, L., Evans, SM., King, M., Croagh, DG., Pilgrim, CHC., Brown, WA., White, K., Philip, J., Earnest, A. & Zalcberg, JR. (2020). PROpatient: A registry-based randomised controlled trial of symptom monitoring and care coordination to improve quality of life for patients with upper gastrointestinal cancer. 3rd Victorian Cancer Survivorship Conference, Melbourne, Australia (12-13 March 2020) (Poster Presentation).

Ioannou, L., Evans, SM., King, M., Croagh, DG., Pilgrim, CHC., Brown, WA., White, K., Philip, J., Earnest, A. & Zalcberg, JR. (2020). PROpatient: A protocol for a registry-randomised control trial of symptom monitoring and care-coordination integrated into clinical practice. 3rd Victorian Cancer Survivorship Conference, Melbourne, Australia (12-13 March 2020) (Poster Presentation).

International Population Data Linkage Network 2020:

Khan, N., Challenges in data linkage – experiences from an upper gastrointestinal cancer data linkage study. International Population Data Linkage Network (2-13 November 2020) (On-Demand Video).

Australian and New Zealand Hepatobiliary Association 2020:

Maharaj, A., Adverse surgical outcomes. Australian and New Zealand Hepatobiliary Association (October 2020).

Clinical Oncological Society of Australia’s Annual Scientific Meeting 2020:

Lisa Brady, Tina Griffiths, Tennille Lewin, Kate White, Jennifer Philip, Dan Croagh, Charles Pilgrim, Wendy Brown, Stephen Brown, Tamsin Bryan, Alanna Bowen, Geoff Chong, Kate Furness, Maria Ftanou, Andrew Haydon, Vicki McLeod, Simone Reeves, Kate Webber, Rachel Wong, Sue Evans, Madeleine King, Arul Earnest, John R Zalcberg & Liane J Ioannou. Developing Clinical Management Pathways for cancer symptoms: A multidisciplinary approach. Clinical Oncology Society of Australia Annual Scientific Meeting (11 November – 13 November 2020) (Poster Presentation).

International Hepato-Pancreato Biliary Association 2020:

Pilgrim, C., The Upper Gastrointestinal Cancer Registry: Biliary Cancer Clinical Quality Registry Pilot Results. International Hepato-Pancreato Biliary Association (November 2020).

Maharaj, A., Pilgrim, C., Patterns and quality of care of care for patients diagnosed with pancreatic cancer in Victoria from 2015 to 2018. International Hepato-Pancreato Biliary Association (November 2020).

2021

Patient-reported outcome measures (PROMs) Down Under 2021:

Lewin, T., Real-Time Symptom Monitoring: Developing a Patient Reported Outcome Measure Tool for Upper-Gastrointestinal Cancer Patients. Patient-Reported Outcome Measures (PROMs) Down Under (2021).

Ioannou, L., Registry-based patient-reported outcome measures (PROMs) and experience measures (PREMs) for pancreatic cancer: A pilot Study. Patient Reported Outcome Measures (PROMs) Down Under (2021).

Epworth Research Week 2021:

Bavor, C., Registry-Based Patient-Reported Outcome Measures (PROMs) & Experience Measures (PREMs) for Pancreatic Cancer: A Pilot Study. Epworth Research Week (2021).

2019

Victorian Psycho-oncology Conference 2019:

Quinn, M., Bonnin, J., Croagh, D., Ioannou, L., & Zalcberg, J., Registry-based patient-reported outcome measures (PROMs) and experience measures (PREMs) for pancreatic cancer: A pilot Study.  5th Victorian Psycho-oncology Conference, Melbourne, Australia (8 November 2019) (Poster Presentation).

ANZHPBA Annual Meeting 2019:

Pilgrim, C. H. C., Muhlen-Schulte, T., Holland, J., Quinn, M., & Zalcberg, J., on behalf of the UGICR hepatopancreatobiliary working party. (2019) The Upper Gastrointestinal Cancer Registry: Establishing a biliary cancer pilot module. Australia New Zealand Hepato-Pancreato-Biliary Association Annual Meeting 2019, Canberra, Australia (24 – 25 October 2019) (Oral Presentation).

Croagh, D., Muhlen-Schulte, T., Holland, J., Quinn, M., & Zalcberg, J., on behalf of the UGICR hepatopancreatobiliary working party. (2019) The Upper Gastrointestinal Cancer Registry: Reviewing quality indicator data from an established pancreatic cancer module. Australia New Zealand Hepato-Pancreato-Biliary Association Annual Meeting 2019, Canberra, Australia (24 – 25 October 2019) (Poster Presentation).

Ioannou, L., Maharaj, A., Zalcberg, J.R., Loughnan, J.T., Earnest, A., Goldstein, D., Kench, J.G., Merritt, N.D., Christophi, C., Burmeister, E.A., White, K., Neale, R.E., Green, S.E., Evans, S.M. (2019). Prognostic models to predict survival in patients with pancreatic cancer: A systematic review. Australia New Zealand Hepato-Pancreato-Biliary Association Annual Meeting 2019, Canberra, Australia (24 – 25 October 2019) (Oral Presentation).

ISOQOL Annual Confrence 2019:

Maharaj, A.D., Samoboreca, S., Evan, SM., Zalcberg, J., Neale, R.E., Goldstein, G., Merrett, N., White, K., Croagh, D., Pilgrim, CHC., Evans, P., Knowles, B., Leong, T., Philip, J., Smith, M. & Ioannou, L. . (2019). Patient Reported Outcome Measures (PROMs) in Pancreatic Cancer: A Systematic Review. International Society for Quality of Life Research Annual Confrence, San Diego, USA (20-23 October 2019) (Oral Presentation).

Ioannou, LJ., Bonin, J.,  Evan, SM., King, M., Croagh, DG., Pilgrim, CHC., Brown, WA., White, K., Philip, J., Earnest, A. & Zalcberg, JR. (2019). PROpatient: A protocol for a registry-randomised control trial of symptom monitoring, using patient-reported outcomes, and care-coordination integrated into clinical practice. International Society for Quality of Life Research Annual Confrence, San Diego, USA (20-23 October 2019) (Poster Presentation).

AGITG Annual Scientific Meeting 2019:

Ioannou, L., Maharaj, A., Zalcberg, J.R., Loughnan, J.T., Earnest, A., Goldstein, D., Kench, J.G., Merritt, N.D., Christophi, C., Burmeister, E.A., White, K., Neale, R.E., Green, S.E., Evans, S.M. (2019). Prognostic models to predict survival in patients with pancreatic cancer: A systematic review. Australasian Gastro-Intestinal Trials Group Annual Scientific Meeting 2019, Adelaid, Australia (21 – 23 August 2019) (Poster Presentation).

Ioannou, LJ., Bonin, J.,  Evan, SM., King, M., Croagh, DG., Pilgrim, CHC., Brown, WA., White, K., Philip, J., Earnest, A. & Zalcberg, JR. (2019). PROpatient: A protocol for a registry-randomised control trial of symptom monitoring, using patient-reported outcomes, and care-coordination integrated into clinical practice. Australasian Gastro-Intestinal Trials Group Annual Scientific Meeting 2019, Adelaid, Australia (21 – 23 August 2019) (Poster Presentation).

Holland, J., Quinn, M., Muhlen-Schulte, T., & Croagh D., on behalf of the UGICR hepatopancreatobiliary working party. (2019) Reviewing real world data from an established pancreatic module of the upper gastrointestinal cancer registry. Australasian Gastro-Intestinal Trials Group Annual Scientific Meeting 2019, Adelaid, Australia (21 – 23 August 2019) (Poster Presentation).

Quinn, M., Muhlen-Schulte, T., Holland, J.,  &  Brown, W., on behalf of the UGICR oesophagogastric working party. (2019) Upper Gastrointestinal Cancer Registry: Oesophagogastric cancer module pilot results. Australasian Gastro-Intestinal Trials Group Annual Scientific Meeting 2019, Adelaid, Australia (21 – 23 August 2019) (Poster Presentation).

Muhlen-Schulte, T., Holland, J., Quinn, M., & Pilgrim, C. H. C., on behalf of the UGICR hepatopancreatobiliary working party. (2019) The Upper Gastrointestinal Cancer Registry: Establishing a biliary cancer pilot module. Australasian Gastro-Intestinal Trials Group Annual Scientific Meeting 2019, Adelaid, Australia (21 – 23 August 2019) (Poster Presentation).

VICS Conference:

Maharaj, A.D., Ioannou, L., Zalcberg, J., Neale, R.E., Goldstein, D., Merrett, N., Kench, J.G., White, K., Croagh, D., Pilgrim, C.H.C., Chantrill, L., Cosman, P., Kneebone, A., Lipton, L., Nikfarjam, M., Philip, J., Sandroussi, C., Tagkalidis, P., Chye, R., Haghighi, K.S., Samra J., Evans, S.M. (2019). Monitoring Quality of Care for Patients with Pancreatic Cancer. Victorian Integrated Cancer Services Conference 2019, Melbourne, Australia (9-10 May 2019) (Oral Presentation).

Maharaj, A.D., Samoboreca, S., Evan, SM., Zalcberg, J., Neale, R.E., Goldstein, G., Merrett, N., White, K., Croagh, D., Pilgrim, CHC., Evans, P., Knowles, B., Leong, T., Philip, J., Smith, M. & Ioannou, L. . (2019). Patient Reported Outcome Measures (PROMs) in Pancreatic Cancer: A Systematic Review. Victorian Integrated Cancer Services Conference 2019, Melbourne, Australia (9-10 May 2019) (Oral Presentation).

Ioannou, L., Maharaj, A., Zalcberg, J.R., Loughnan, J.T., Earnest, A., Goldstein, D., Kench, J.G., Merritt, N.D., Christophi, C., Burmeister, E.A., White, K., Neale, R.E., Green, S.E., Evans, S.M. (2019). Prognostic models to predict survival in patients with pancreatic cancer: A systematic review. Victorian Integrated Cancer Services Conference 2019, Melbourne, Australia (9-10 May 2019) (Oral Presentation).

Bonin, J., Zalcberg, JR., Evan, SM., King, M., Croagh, DG., Pilgrim, CHC., Brown, WA., White, K., Philip, J., Earnest, A. & Ioannou, LJ. (2019). Upper Gastrointestinal Cancer Care (UGICC): Protocol for a registry-based randomised controlled trial of symptom monitoring, using patient-reported outcomes (PROs), and care coordination integrated into clinical practice. Victorian Integrated Cancer Services Conference, Melbourne, Australia (9-10 May 2019) (Poster Presentation).

Brown, W., Aly, A., Burton, P., Cashin, P., Chu, J., Duong, C., Haydon, A., Hii, M., Michael, M., Porter, I., Spillane, J., Tagkalidis, P., Holland, J., Muhlen-Schulte, T., Quinn, M., Scarborough, R.,  Zalcberg, J. (2019). Upper gastrointestinal cancer registry: Oesophagogastric cancer module pilot results. Victorian Integrated Cancer Services Conference 2019, Melbourne, Australia (9-10 May 2019) (Poster Presentation).

RACS Annual Scientific Congress: 

Ioannou, L., Maharaj, A., Zalcberg, J.R., Loughnan, J.T., Earnest, A., Goldstein, D., Kench, J.G., Merritt, N.D., Christophi, C., Burmeister, E.A., White, K., Neale, R.E., Green, S.E., Evans, S.M. (2019). Prognostic models to predict survival in patients with pancreatic cancer: A systematic review. Royal Australian College of Surgeons (RACS) Annual Scientific Congress (ASC), Bangkok, Thailand (6-10 May 2019) (Poster Presentation).

2018

Maharaj, A.D., Ioannou, L., Zalcberg, Z, Neale, R.E., Goldstein, D., Merrett, N., Kench, J.G., White, K., Croagh, D., Pilgrim, C.H.C., Chantrill, L., Cosman, P., Kneebone, A., Lipton, L., Nikfarjam, M., Philip, J., Sandroussi, C., Tagkalidis, P., Chye, R., Haghighi, K.S., Samra J., Evans, S.M. (2018). Monitoring Quality of Care for Patients with Pancreatic Cancer. Alfred Health Research Week, Melbourne, Australia (18-22 June 2018) (Poster Presentation).

Maharaj, A.D., Ioannou, L., Zalcberg, J., Neale, R.E., Goldstein, D., Merrett, N., Kench, J.G., White, K., Croagh, D., Pilgrim, C.H.C., Chantrill, L., Cosman, P., Kneebone, A., Lipton, L., Nikfarjam, M., Philip, J., Sandroussi, C., Tagkalidis, P., Chye, R., Haghighi, K.S., Samra J., Evans, S.M. (2018). Monitoring Quality of Care for Patients with Pancreatic Cancer. International Forum on Quality & Safety in Healthcare, Melbourne, Australia (10-12 September 2018) (Poster Presentation).

Maharaj, A.D., Ioannou, L., Croagh, D.,  Zalcberg, J., Neale, R.E., Goldstein, D., Merrett, N., Kench, J.G., White, K., Pilgrim, C.H.C., Chantrill, L., Cosman, P., Kneebone, A., Lipton, L., Nikfarjam, M., Philip, J., Sandroussi, C., Tagkalidis, P., Chye, R., Haghighi, K.S., Samra J., Evans, S.M. (2018).  Monitoring Quality of Care for Patients with Pancreatic Cancer. The Conjoint Australia and New Zealand Upper GI and HPB Meeting 2018. Risk – Measure & Managment, Wellington, New Zealand (8-9 October 2018) (Oral Presentation).

Brown, W., Zalcberg, J., Ahmad, A., Burton, P., Cashin, P., Chu, J., Duong, C., Haydon, A., Hii, M., Porter, I., Michael, M., Spillane, J., Tagkalidis, P., Scarborough, R., Heriot, N., Greenhill, E., Holland, J. The Upper Gastrointestinal Cancer Registry, using real-world data to measure quality of care in oesophagogastric cancers. The Conjoint Australia and New Zealand Upper GI and HPB Meeting 2018. Risk – Measure & Managment, Wellington, New Zealand (8-9 October 2018) (Oral Presentation).

2017

Croagh D, Zalcberg J, Nikfarjam M, Pilgrim C, Evans S, Lipton L, Leong T, Neale R, Kench J, Sievert W, Smith M, Knowles B, Holland J, Scarborough R and Heriot N, Greenhill E, Ioannou L, Maharaj A. Results from the Upper Gastrointestinal Cancer Registry: pancreatic cancer module pilot. Annual Meeting for Australian and New Zealand Hepatic, Pancreatic & Biliary Association (ANZHPBA), Adelaide, Australia (23-24 October 2017) (Oral Presentation).

Brown W, Zalcberg J, Haydon A, Porter I, Tagkalidis P, Aly A, Michael M, Cashin P, Chu J, Hii M, Burton P, Duong C, Spillane J, Holland J, Scarborough R, Heriot N, Greenhill E. The Upper Gastrointestinal Cancer Registry: Piloting an Oesophagogastric Module. Australia & New Zealand Gastric & Oesophageal Surgery Association (ANZGOSA) Annual Meeting, Cairns, Australia (5-6 October 2017) (Oral Presentation).

Holland J, Greenhill E, Scarborough R, Heriot N and Zalcberg J. Upper Gastrointestinal Cancer Registry, harnessing Clinical Quality Registries for quality improvement and research. The Association of Regulatory and Clinical Scientists to the Australian Pharmaceutical Industry Conference (ARCs), Sydney, Australia (22-24 August 2017) (Poster Presentation).

Heriot N, Zalcberg J, Croagh D, Holland J, Scarborough R, Greenhill E, Ioannou L, Maharaj A, Pilgrim CHC and Nottle P. Results from the Upper Gastrointestinal Cancer Registry Pancreatic Cancer Module Pilot. Alfred Research Week, Melbourne, Australia (23-27 October 2017) (Poster Presentation).

2016

Croagh D, Zalcberg J, Nikfarjam M, Pilgrim C, Evans S, Lipton L, Leong T, Neale R, Kench J, Sievert W, Dixon A, Holland J, Scarborough R and Heriot N. The Upper Gastrointestinal Cancer Registry: pancreatic cancer pilot module. Annual Meeting for Australian and New Zealand Hepatic, Pancreatic & Biliary Association (ANZHPBA), Gold Coast, Australia (24-26 October 2016) (Oral Presentation).

Zalcberg J, Scarborough R, Holland J, Heriot N and Shapiro J. Upper Gastrointestinal Cancer Registry, a new clinical quality registry. Cabrini Research Day, Melbourne, Australia (September 2016) (Poster Presentation).

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