The UGICR can be used as a platform for hypothesis-driven research projects. Access to UGICR data is restricted to ensure that participant privacy is protected.
Researchers or institutions who would like access UGICR data for further research need to complete the following:
- Contact the UGICR Coordinator to discuss your research proposal, the application process and request the data access form.
- Submit a completed data access form, with a HREC Approval Certificate and other relevant documentation for review of the UGICR Steering Committee
- Clinicians contributing data to the registry, can request their own data from the UGICR Coordinator at no charge
- Researchers submitting data requests for external research purposes may be charged a fee.