UGI-PROMs: Registry Based PROMs for Pancreatic Cancer
A Monash Partners Comprehensive Cancer Consortium (MPCCC) grant was awarded to pilot two complementary projects to implement real-time patient-reported outcomes measures (PROMs) and patient-reported experiences measures (PREMs)
PART A
A registry-based pilot study of real-time PROMs and PREMs in patients with pancreatic cancer. Clinicians and consumers will be consulted to inform the development and implementation of PROMs and PREMs at four MPCCC affiliated public health services.
Academic lead: Prof John Zalcberg
PART B
The development and implementation of PROMs and PREMS in a clinical setting. (Note: Part B is not being conducted by UGICR employees).
Academic lead: Prof Eva Segelov
SYMPTOM-UGI: Upper Gastrointestinal Cancer SYMPTOM Study
A collaborative project led by Professor Jon Emery from the University of Melbourne, looking at patient pathways from onset of symptoms to cancer diagnosis. Potential participants for this project will be identified through the UGICR.
Principal Investigators: Prof Jon Emery (CPI) and Prof John Zalcberg
Pancreatic Cancer Image Biobank
An PanKind Foundationfunded project, established to compare the of European, North American and Australian perspectives on the resectability of non-metastatic pancreatic cancer. This project is leveraging data held by the Upper Gastrointestinal Cancer Registry to establish a secure ‘image biobank’ containing the diagnostic CT scans of 100 patients with non-metastatic pancreatic cancer. The images will be reviewed by a group of international surgeons and radiologists who are experienced in the diagnosis and management of pancreatic cancer. This approach will enable us to determine and compare how different experts for different, specialties, sites and countries interpret the technical resectability of the cancer.
Principal Investigators: Prof John Zalcberg, Dr Daniel Croagh, Dr Jan Gerstenmaier, Prof Jaswinder Samra
Development and validation of registry-derived stage for pancreatic, stomach, liver, uterine and ovarian cancer: a national collaborative study
This study will develop Business Rules to enable population-based registries to assign a stage of disease at diagnosis for five types of cancers. Following development of the Business Rules, validation of the RD Stage will be tested for two cancers (pancreas and uterine cancers). This project will be undertaken using data from population-based cancer registries in each jurisdiction. This study will be undertaken over a 16-month period from August 2021 to December 2022.
Coordinating Principal Investigator: Prof Sue Evans
Gastrointestinal cancer treatment and survival in culturally and linguistically diverse patients: Exploring health disparities in an Australian population.
This study will characterise the effect of cultural and linguistic diversity on health outcomes in a cohort of GI patients to help improve outcomes for these patients.
Coordinating Principal Investigator: Prof Justin Yeung